Tuesday, April 5, 2011

Great Strides

On May 21st our family will be participating in our first event with the Cystic Fibrosis Foundation.  In many ways, this is our "coming-out" party.  By registering for the event, we have now been identified by the Foundation and will be on the local chapter's email list for future events.  In some ways, that's exciting.  In other ways, it's like stubbing your big toe--it hurts.  But this is something that we feel we need to do.  This is something that will directly benefit our family.  The Cystic Fibrosis Foundation is the driving force behind today's research, and what research it is!  

I invite you to join our team and help to raise much needed funds to support Cystic Fibrosis research. You will also enjoy food, fun, and music at the Great Strides event at America the Beautiful Park on May 21st! Great Strides is the Cystic Fibrosis Foundation's largest, most successful, and most important national fundraising event.

So many young lives depend on the vital, ongoing advances in CF research - to keep that momentum going, we need your help now!  Walking in Great Strides is such an effective way to add tomorrows every day to the lives of those with cystic fibrosis. Your enthusiasm and fundraising efforts will help give more tomorrows to those with CF every day.

It's so easy to sign up - just visit my Great Strides Home page , click on "Join My Walk Team!". Then follow the step-by-step instructions on how to register and begin your fundraising campaign.  If fundraising isn't for you, please feel free to come and walk with us (but still sign up on our team so that the event planners will know how many to expect).  We have been so grateful for all of your support and we would love to have you with us as we take our Great Strides toward a better future for Finn and all of those out there suffering with this disease.

1 comment:

The Bertagnoles said...

thats great that you are getting involved. Im sure there are mixed emotions! i hope it turns out really well for you and your family. i need to call you again soon. Im getting so frustrated with the specialist, we still don't even have an appointment and theyve had our paperwork for a month now!!!!! nothing I can do...trust me, ive blown up their phones and talked the secretary's ear off (poor girl). anyways. Ill call you soon. :)