It's been a while since I've updated on Finn's GI issues, so I thought I'd do that quickly. We've been on the bethanechol now for almost 3 months. I'll admit that I have been less than strict with this medication. It's a refrigerated medication that needs to be given at even intervals throughout the day with meals. Ummmm....yeah. Dinner, that's easy. Breakfast, also easy. It's that mid-day dose that normally doesn't happen. He doesn't eat lunch half-way between breakfast and dinner, and the half-way point doesn't always put me at home near a refrigerator. It's a complicated logistic that I haven't been able to solve. That being said, I did hear his test results last week and have renewed my commitment to this medication. I found out last week that at the one-hour mark Finn had digested only 32% of his Ensure (it should be 50%), and at the two-hour mark he had only digested 55% (it should be 75%). So, yep, he has slow motility and needs this medication.
At our CF clinic appointment at the end of September we discussed the issues with Dr. Z and she thought we needed to try a daily dose of Miralax. CFers do not absorb as much as a "normal" person and therefore should be dirtying diapers more frequently. Finn normally produced one diaper a day at that point. So, we added Miralax with the goal of 2 to 4 diapers a day, which is apparently the common amount of a CFer Finn's age.
Since starting Miralax we have had no unexplained vomiting episodes! It has actually been almost 3 months since we have had one. I think we may have found the answer! Yippee!! I'm keeping my fingers crossed and I can't wait to go back to the GI with the good news.
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